Declined by St. Judes

Hi Everyone,

Grace started doing really well on Wed. so first thing Thurs. morning we consulted St. Judes in the U.S. asking if they would consider continuing her treatment. After reviewing her case the Director of the Brain Tumour Program agreed with how Sick Kids handled her treatment and agreed that nothing further could be done, again we were devastated. We came home Thurs. evening to meet with Grace's palliative Care Team (doc, resident and nurse) here at our home. They explained to us how it would happen and steps we can take to be prepared for the challenges... I will not get into detail because it's just too unbelievable really. We took Grace for a bike ride last night and her daddy brought her to her best buddy's (Nicky) house for some play time. Disney sent Grace a gift and a signed picture from Micky given we had to cancel. Sorry if my messages are getting less frequent and more difficult to deceiver. Things are surreal right now and I'm try to stay in touch without taking anytime away from Grace. This is all so devastating.

Les