CT on Monday
Hi Everyone,
Sick Kids understood wanting a CT now if we are considering phase one trials. They booked it for Monday at 11am and also informed us that there may be a phase one/two trial here in T.O. that may be of interest to us. So on Monday we are hoping to meet with the Director of Experimental Medicine at Sick Kids as well as have Grace scanned an meet with her Neuro Onc team. I truly hope the VP16 is working for her. Although it is known not to be a cure, it could buy us some time to investigate available trials in more detail. Today we brought Grace to Bronte pool with her friends. She's very moody because of her Dex and had 4 tantrums while we were there. This is hard because her friends don't understand why she is upset. All in all I think it was a good day. At least she got some fresh air. Her Daddy just brought her to the pet store to buy a present for Griffin (our cat). I'm off to put on a load of laundry and damp mop the hardwood.
Everyone have a great weekend.
Love,
Les
Sick Kids understood wanting a CT now if we are considering phase one trials. They booked it for Monday at 11am and also informed us that there may be a phase one/two trial here in T.O. that may be of interest to us. So on Monday we are hoping to meet with the Director of Experimental Medicine at Sick Kids as well as have Grace scanned an meet with her Neuro Onc team. I truly hope the VP16 is working for her. Although it is known not to be a cure, it could buy us some time to investigate available trials in more detail. Today we brought Grace to Bronte pool with her friends. She's very moody because of her Dex and had 4 tantrums while we were there. This is hard because her friends don't understand why she is upset. All in all I think it was a good day. At least she got some fresh air. Her Daddy just brought her to the pet store to buy a present for Griffin (our cat). I'm off to put on a load of laundry and damp mop the hardwood.
Everyone have a great weekend.
Love,
Les
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