Better Today

Hi Everyone,

The doc just left. Grace's respiratory rate has increased a bit... which is good. Her heart does not seem to be working as hard as it was yesterday... also good. It's weird how our definition of "good" changes as days pass. She seems comfortable and watched 15min of her new favorite movie "Strawberry Shortcakes Get Well Adventure" (thanks Carly!). During the intro song of this video she actually said "nap (snap) Dada". It was wonderful to see Ian snapping and dancing while Grace lye in bed attempting to snap her own fingers. This is the longest she has been awake and responsive for a couple of days. The doctor talked today about her still being with us on Monday if she remains as stable as she was this morning. She said if that ends up being the case she feels it would be a good idea to get a hospital bed sent to the house and set it up in the family room so we can move her from upstairs to down for a change in scenery. Ian and I did shifts through the night last night given that when the doctor examined her at 6pm she was not good. We did not want something to happen while we were sleeping. Just like at the hospital... I couldn't contribute 50% only able to do a shift between 2:30am and 5:30am. I find the nights so hard. Thank god for Ian. Grace is now sleeping... we hope she has awake time this afternoon so her friend Mo can come over for some stories. Please keep praying for our babies comfort.

Love,
Les