Round 4 Delayed
Hi Everyone!
This is my first update using my fancy new COMPAQ laptop!
We went to clinic on Thurs. to find out that Grace is still having a very hard time recovering from round 3. Her counts where still very low and are now expected to take a while to recover since as of Wed. she had received her 14th dose of GCSF (the needle she receives post chemo to help her white blood cells recover). They discontinue this very expensive med ($250 a vial) after 14 days because there is a belief that it starts to "crowd out" the recovery of red blood cells and platelets. So now it is up to Grace's body to recover without pharmaceutical assistance. Ian and I noticed that she was having some abdomen pain and although it's hard to tell if her G tube site is infected (Grace can not produce puss - indicator of infection- because her white blood cell count is too low) the doctors decided to start her on an antibiotic for G tube infections just in case. This med can be given via G tube so we did not have to be admitted and the doctor's just requested us to come back to clinic on Monday for another CBC and hopefully the start of round 4. Unfortunately Grace spiked a fever at 10pm on Friday night and we headed to Emerg. Broad Spectrum IV antibiotics were started and blood was taken to culture and we got settled into a room in the oncology "over flow" ward by 4am. Grace's fever broke on Saturday, her cultures came back negative and her course of broad spectrum IV antibiotics were complete as of Monday but the doc's wanted to keep us one more night to monitor her G tube site. This morning her site looked well enough to be treated at home and her spirits were good so we were discharged until Thurs. Thurs. we will return to clinic for CBC and possibly Grace's 4th round but we have already been warned that it is very possible that Grace will still not be ready and in that case we will aim for a 4th round start of Mon. Jan. 16th. If her white blood cell count is still struggling to recover on Thurs. the doc's may restart her GCSF. Generally Grace is in good spirits and starting to show some interest to getting out of bed. She actually sat in her high chair and ate 2tbsp of Alphagetti and 6 gold fish crackers for lunch. That is the first time she has had a meal by mouth in 2 months (very exciting). Keep our baby in your thoughts and well keep you posted.
Take good care,
Les
This is my first update using my fancy new COMPAQ laptop!
We went to clinic on Thurs. to find out that Grace is still having a very hard time recovering from round 3. Her counts where still very low and are now expected to take a while to recover since as of Wed. she had received her 14th dose of GCSF (the needle she receives post chemo to help her white blood cells recover). They discontinue this very expensive med ($250 a vial) after 14 days because there is a belief that it starts to "crowd out" the recovery of red blood cells and platelets. So now it is up to Grace's body to recover without pharmaceutical assistance. Ian and I noticed that she was having some abdomen pain and although it's hard to tell if her G tube site is infected (Grace can not produce puss - indicator of infection- because her white blood cell count is too low) the doctors decided to start her on an antibiotic for G tube infections just in case. This med can be given via G tube so we did not have to be admitted and the doctor's just requested us to come back to clinic on Monday for another CBC and hopefully the start of round 4. Unfortunately Grace spiked a fever at 10pm on Friday night and we headed to Emerg. Broad Spectrum IV antibiotics were started and blood was taken to culture and we got settled into a room in the oncology "over flow" ward by 4am. Grace's fever broke on Saturday, her cultures came back negative and her course of broad spectrum IV antibiotics were complete as of Monday but the doc's wanted to keep us one more night to monitor her G tube site. This morning her site looked well enough to be treated at home and her spirits were good so we were discharged until Thurs. Thurs. we will return to clinic for CBC and possibly Grace's 4th round but we have already been warned that it is very possible that Grace will still not be ready and in that case we will aim for a 4th round start of Mon. Jan. 16th. If her white blood cell count is still struggling to recover on Thurs. the doc's may restart her GCSF. Generally Grace is in good spirits and starting to show some interest to getting out of bed. She actually sat in her high chair and ate 2tbsp of Alphagetti and 6 gold fish crackers for lunch. That is the first time she has had a meal by mouth in 2 months (very exciting). Keep our baby in your thoughts and well keep you posted.
Take good care,
Les
posted by Lesley at 4:11 p.m.
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